“Somewhere, something incredible is waiting to be known.”—Sharon Begley.

At some point around this time, I don’t remember the exact date, I started to feel pain around the PEG site. The skin around the site was totally normal with  no indication of anything amiss, no swelling, no redness, no heat, just normal skin. 

There was more than one kind of pain too. I would describe one of them as “sharp” like I was being stabbed with a knife. 

This would occur on and off. I first tried to treat it with topical anesthetics and eventually we went as far as injecting the site with lidocaine. This led to a strange juxtaposition. I was in agony while the site was numb. Obviously, this meant the pain wasn’t at the PEG site per se, but either in the spinal cord or in the brain. Given that my throat was burning 24/7, it was easy to conclude that whatever was responsible for that pain was also responsible for these pains too.